Episode 17: Patient Education and Vasculitis Registries with Dr. Aurore Fifi-Mah
In VF's Vasculitis Visionaries' seventeenth episode, Ben and Kaley are joined by Dr. Aurore Fifi-Mah, a clinical associate professor with University of Calgary's Division of Rheumatology in Alberta, Canada. A vasculitis researcher and patient advocate, Dr. Fifi-Mah has collaborated with and/or cofounded many organizations, including the Calgary Vasculitis Association, the Caribbean Association of Rheumatology, and the Vasculitis Clinical Research Consortium (VCRC). She's studied the adverse effects associated with immunotherapy and advised vasculitis patients on timing their COVID-19 vaccinations around their immunosuppressive treatments. Tune in to learn more about her patient advocacy and education, as well as the use of patient registries in vasculitis research.