Episode 41 | Writer Rebecca Stanfel is bringing the sarcoidosis message to the masses. And, man, does she know the story.
Rebecca Stanfel has been dealing with sarcoidosis for 17 years. Not just dealing with it, but at times, barely hanging on. All of this from a once world class cyclist, wife and mother who happens to have an amazing gift for writing. Her essays on living with sarcoidosis while struggling with the pandemic have been published in the Washington Post and HuffPost.
During the pandemic, Rebecca moved away from her family for eight months -- to ensure her immune system would not be compromised by her husband and son who were not able to quarantine simply due to their daily responsibilities. Rebecca has had such a tough run with sarc, to the point she has been bed-ridden for months at a time, that she could not risk getting COVID-19. In this episode of the Sarc Fighter Podcast, Rebecca talks about her writing, her decision to move out and the years-long struggle she has faced as sarcoidosis overtook much of her body.
Washington Post Essay: https://www.washingtonpost.com/health/pandemic-requires-patience-time-will-pass/2021/04/16/a75cdeea-9631-11eb-b28d-bfa7bb5cb2a5_story.html
Huff Post Essay: https://www.huffpost.com/entry/immunocompromised-covid-vaccine-cdc_n_60b043c9e4b04ddf13ebecd6
Rebecca's Blog Chronic Town: https://chronicville.wordpress.com/
Bonus Episode on COVID-19 and Sarcoidosis https://beatsarc.podbean.com/e/bonus-episode-sarcoidosis-and-covid-19-presented-by-the-foundation-for-sarcoidosis-research/
Bonus Episode Sarcoidosis and Prednisone https://beatsarc.podbean.com/e/bonus-episode-sarcoidosis-town-hall-dealing-with-prednisone-presented-by-the-foundation-for-sarcoidosis-research/
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Watch the Prednisone Town Hall on YouTube https://youtu.be/dNwbcBIyQhE
More on aTyr Pharma: https://www.atyrpharma.com/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!
If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/
Sarc Fighter on Instagram https://www.instagram.com/thesarcfighter/