041: Ariel of @Carpe_That__Diem on Gender, Identity, and Disability
In this second installment of Lauren’s interview with Ariel, we dig further into his conditions and lifestyle: what his advocacy work means to him, his journey through the workforce and struggle to find employment with disabilities, his experience as a service dog handler, and life with thyroid disease, bipolar II, borderline personality disorder, endometriosis as a gender-diverse individual, and chronic pain. He emphasizes that these experiences are not unique to him – but that he is privileged to share his unique experience. (Again – if you hear dogs barking in this one, it’s just Caliban’s buddy Blue giving us a shout-out!) Join us as Ariel shares… - what a typical day is like for him - that he struggles with agoraphobia - his need to connect with nature - what it’s like to lean on others as a Spoonie - that weather changes can trigger his symptoms, and force him to focus his work inward rather than outward - the expansion of his advocacy work - his background as a college instructor, why he loves academics, and how his work as an educator influences his advocacy work - what his advocacy work means to him - how poorly our working world is designed for us – and the lack of accommodations and opportunities available, especially for disabled individuals - factions within the disability community – and how the disability community is, however, also one of the most polite out there - an examination of his childhood development, and how it has influenced who he is today - his experience of discrimination when out in public with his service dog, Caliban - that he used to use mobility aids full-time – and now his disability markers are far less visible - that he lives with additional diagnoses, but chooses not to discuss them because there are already great advocates for those conditions - his advice for other Spoonies or individuals confronting gender identity issues - the importance of finding community - the importance of his changed relationship to food – from dysphoria to nourishment